Epidermolysis bullosa is a global orphan genetic disease, with severe recessive cases more common in cultures where marriage within related families is encouraged. What simple and less expensive measures can be taken in resource-poor areas to save and prolong life and improve the quality of life in EB?Go to Lecture
Professor Dedee Murrell is Chair of the Department of Dermatology at St George Hospital, University of NSW, in Sydney, Australia. She completed medical training at Cambridge and Oxford Universities, 3 years of internal medicine in the UK and USA, dermatology training at UNC-Chapel Hill, a fellowship in dermatopharmacology at Duke, blistering diseases and cell biology at New York University, and then became a clinical scholar at Rockefeller University, focussing on epidermolysis bullosa. She holds a doctorate on the pathogenesis of blistering disorders, her main subspecialty interest, and her current research focuses on the development and validation of clinical outcome measures for EB and the Autoimmune blistering diseases to enable clinical trials to proceed in these orphan diseases. She has over 300 peer-reviewed papers, 14,000 citations (H index 58), and has edited 6 books on blistering diseases, including the new textbook. She lectures at international congresses regularly and is a visiting professor on 5 continents. She was recently elected as the first International Board Member of the EADV, has served as Executive Vice President of the International Society of Dermatology from 2011-13, as Chair of Communications for the ISD, 2013-17, and will be the Congress President of the ICD 2021, in Melbourne, Australia. She serves as founding Co-Editor of the International Journal of Womens Dermatology, is an associate editor of the British Journal of Dermatology, and serves on the editorial boards of JAMA Dermatology, International Journal of Dermatology, JEADV, Acta Dermatovenereologica, and previously, the JAAD.