Presentation on Managing EB in a resource-poor environment (Video on Demand
with English, Spanish, Japanese and Chinese Subtitles: click on “CC” at the bottom of the video) : LINK
Presentation and description by Prof. Dedee Murrell MD, PhD (Australia) [World Skin Health Day 2022 -Guinea] (To find the presentation simply use the filter buttons from the event homescreen)
- Epidermolysis bullosa is a global orphan genetic disease, with severe recessive cases more common in cultures where marriage within related families is encouraged.
- This presentation puts on display what simple and less expensive measures can be taken in resource-poor areas to save and prolong life and improve the quality of life in EB.